I'm listening to Indigo Girls, can you tell? :)
Well, this whole experience is the journey of a lifetime and always changing. Last week, seemingly out of nowhere, my hair started falling out in huge chunks. Woah!!! When I took my hair down last Thurs., I realized I had a big chunk of hair missing in the back. I was quite traumatized, especially since hair loss is not common with interferon treatment and why is it starting now? I'm going to have to go get my hair cut soon to even it all out. Hopefully, the hair loss slows down... from what I have read, I probably won't completely lose my hair. My doctors are also going to check my thyroid levels on Friday to see if they're O.K. I've lost 20 pounds since December. Hair and weight loss are common side effects with thyroid problems, which can be a side effect of interferon treatment.
I'm really looking forward to going to the Deepak Chopra conference next week. I'm trying to not focus on how much I will miss Todd and the kids and focus on this amazing opportunity to be immersed into a healing and nurturing setting. I need to continue my treatments while I'm there, so I'm really hoping I feel O.K.!
I have lots more things I want to add, but I'm not feeling like my thoughts are flowing very well today. I will post more later...
xoxo
Kim
Tuesday, May 19, 2009
Monday, May 4, 2009
Journey into Healing
I haven't updated in awhile, but wanted to share a little of what's going on. First of all, I am very excited because I've signed up for Deepak Chopra's 5 day workshop, Journey into Healing, in Chicago on May 27th-31st! :) http://www.chopra.com/journey The retreat will include meditation instruction, yoga, and mind/body healing sessions. Since my month of intensive treatment finished, I've really struggled with finding my way on this healing path... I think this retreat will be empowering and very healing for me.
The shots haven't been as easy as I had hoped. I've been dealing with fevers all the time, even on my "off" days. I've also been extremely tired and weak. Last week, I finally called Dr. Albertini because I really felt like I was not coping well. He had me skip my treatment on Fridy to give me a break. He was very supportive about the physical and emotional toll the treatment has taken on me. After I resume the shots, we are going to reevaluate how things are going and at that point, we'll discuss whether I need a dosage reduction or whether we want to stop the shots altogether. Because of the study that was released not too long, there is the question whether the shots offer any added benefit anyway! So, we'll see what will happen. For now, my plan is to just keep doing the shots until I talk to Albertini again.
O.K., Drew wants to play outside. More later...
Kim
The shots haven't been as easy as I had hoped. I've been dealing with fevers all the time, even on my "off" days. I've also been extremely tired and weak. Last week, I finally called Dr. Albertini because I really felt like I was not coping well. He had me skip my treatment on Fridy to give me a break. He was very supportive about the physical and emotional toll the treatment has taken on me. After I resume the shots, we are going to reevaluate how things are going and at that point, we'll discuss whether I need a dosage reduction or whether we want to stop the shots altogether. Because of the study that was released not too long, there is the question whether the shots offer any added benefit anyway! So, we'll see what will happen. For now, my plan is to just keep doing the shots until I talk to Albertini again.
O.K., Drew wants to play outside. More later...
Kim
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